What we do
SHOUT is an ally for patient advisory groups, empowering them to create meaningful, systemic change for individuals living with challenging diseases. SHOUT liaises between patient advisory groups and other support organisations as well as the pharmaceutical and healthcare industries.
SHOUT provides expert coaching for scientific and technology-based speakers.
Lobbying to raise awareness of the challenges of living with rare conditions in order to help shape healthcare policy and resource allocation in ways that benefit patients.
Collaborating with people living with rare conditions to gather valuable insights on their needs, lived experiences, and preferences.
Creating and sharing information and awareness campaigns to engage with various stakeholders to promote the interests of those living with rare conditions, thereby ensuring that their voices are heard and considered in decision-making processes.
Coaching scientific and technology-based speakers to communicate complex ideas with clarity, credibility, and impact. We help researchers, clinicians, industry professionals, and innovators transform technical content into compelling, audience-centered presentations.